My brother Chase is the inspiration behind many things I have done in my 30 years of life, but perhaps the most exciting thing he has inspired thus far is Creation Studio. The community of people with IDD (intellectual and developmental disabilities) has always been important to me as my life has been intertwined with theirs since I can remember. Chase was born when I was 2, and my mom knew soon after his birth that he was not developing normally. It took many doctors and many months before Chase received a diagnosis, and even that diagnosis is quite broad. He has Congenital Encephalopathy, which means brain damage at birth. He is 28 now but is non-verbal and is quite limited in cognitive function.
In addition to his limits, though, Chase has always been a joyful, silly, and fun person. I remember wrestling him when we were kids, dancing for him as The Wiggles played on the television screen behind me, sharing McDonald’s french fries (well, he mostly stole them from me), and singing his favorite “this song is for Chaaaaase” tune over and over (likely to the dismay of my parents, who must have heard me sing those five words countless times each week).